Nephrology Appointment

Today we had Roman's first clinic visit with Nephrology (the Kidney doctors).  All around it was a great appointment.  

Here's a brief run down of the good news we got today!

- Kidney function up to 40% (It was at 30% (actually today they said 27%) when he was discharged from the hospital.)

- Sodium level was LOW so we don't have to cut it out anymore.  Still need to make sure he doesn't have too much, but it's okay for him to have crakers, pretzels, etc.

- Potassium and phosphorus levels still PERFECT.  They said it would be okay for him to have a little potassium, 10 or less fries, a slice of tomoto is okay, a few pieces of cantaloupe etc.

- We only need to go in every month now for blood work instead of every week. (Except they want us to go in again next week to make sure he doesn't get another infection when he stops taking the antibiotic from the infection last week)

- He can now sleep 6 hour stretches instead of 4 at night so we only need to wake him once at night to go to the bathroom.  The doctor said "He's probably okay to sleep all night if it's only 7 or 8 hours."  When I told him that Roman slept 11-12 hours most nights he said "Yeah, you are still going to have to get him up at night then." Seriously, what 5 year old only sleeps 7 or 8 hours?  Or does Roman really sleep a lot?  I always thought that was normal.  

- We were given the all clear to travel and the nephrologist said they are okay with him going back into swimming lessons, (he did say that the urologists were the ones that recommended 6 weeks healing before he starts again, so we should wait for the all clear from them before he starts again, but they see no reason why he can't swim.)

- The dietitian is FABULOUS and gave us so many more ideas and was so positive about how we are doing with his diet modification.  She said most people have much slower improvement because they struggle more with the diet.  

After his appointment we went and said hello to Odessa (the child life specialist) and went to see Lacey and McCall but they were both off today.  We'll go back again in a few weeks when we go to the urologist and say hello if they are there.